This week (11-17th June) is Huntington’s Disease Awareness Week.
Huntington's disease (HD) is a hereditary illness which means it is passed through families. It is a neurological condition and is part of a group of diseases which affect the brain and central nervous system.
The Scottish Huntington’s Association (SHA) is a small Scottish Charity that was established by families living with HD in the late 1980s. Breathing Space and SHA work in partnership to provide an out of hours telephone support service for families living with Huntington's disease.
Richard Leckerman, Breathing Space National Development Officer, will be attending the SHA conference on care for people with Huntington's disease called "Raising the standard" this week. The conference takes place at the Carnegie Conference Centre in Dunfermline on Thursday 14th June.
To find out more about Huntington’s disease visit the SHA website.
Here, you can find a new ‘Roadmap Resource’ about planning the route ahead after a diagnosis of Huntington’s disease.